Web blogs live forever apparently. My last Ride Ataxia blog was the SoCal ride in December 2010. I missed telling you here about the 2nd annual 2011 RA NorCal ride that occurred in Davis, CA. so here the post-ride Email blurb I sent out:
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May 14th, 2011 Ride Ataxia NorCal
We had a great time at the 2nd Annual Ride Ataxia NorCal in Davis, California
on Saturday! Over 300 riders participated and so far the Ride has raised over
$87,000! WheeHoo (And money is still coming in! It's not too late to sponsor
the ride if you haven't yet!)!
For those of you on Facebook go here for
some pics and blogs.
https://www.facebook.com/RideAtaxia
https://www.facebook.com/photo.php?fbid=10150182140361375&set=a.10150182140311375.303241.516956374&type=1
https://www.facebook.com/photo.php?fbid=1971458976073&set=a.1971416375008.2120308.1530967096&type=1
https://www.facebook.com/media/set/?set=a.179176222109105.48065.156998930993501
http://thegorecycle.blogspot.com/2011/05/rideataxia-norcal-wrap-up.html
We drove to
Winters with our camper on Friday morning, got it set up and
drove the 35
minutes to the Davis Veteran's Memorial building at 3:30pm to
help the
pre-registration starting at 4pm. Organized social chaos ensued,
with Felicia
knowing every team's unique details to help the process along
and everyone
getting re-acquainted all around the table. At 5:30pm we closed
shop and went
to the Bicycle Hall of Fame museum where Brown snd Caldwell
hosted a
wonderful get together with Outback Steakhouse provided hors
d'oeuvres and
drinks. Wonderful casual re-acquainting and meeting time.
The morning was
cool and some clouds were overhead but spirits were high as
we started to
gather at 7:30am for a biker's breakfast and last minute
registrations.
Highlights of the day:
- It was great to have all the 2010 Team FARA RAAM
riders there (Kyle, Sean,
Mike and John), and to see how encompassing they
were with everyone. I puff
up with pride when I see how much more than just
athletes these young men
are.
- The Helms' came down from Missoula,
Montana for this one day ride! Wow! It
was so good to see all of them and to
meet the grandparents.
- I got to meet a load of wonderful new people
including the Penston's and
the Prettyman's!
- The food and drinks
provided by business friends of Greg Mazeres were over
the top just like last
year! Kudo's to Greg and cohorts!
- I want to mention the Hartigan's as an
example of all the volunteers doing
SAG, rest stops,etc. I saw Vicki briefly
at pre-registration, period. She
and all the others worked tirelessly to make
the Ride the outstanding
logistical and supportive ride it was. Kudos, Kudos
and Kudos!
- My bit this year (and probably for years to come) focused on
the
wheelchair trailers. Sophia's dad Eric pedaled her in Phillip
Bennett's
memorial wheelchair trailer and I pedaled Brianne in hers, both of
us on the
15 mile course. We had just enough time (with Felicia holding the
start for
a few minutes) to get Brianne and Sophia "mounted" and comfortable
in their
"bikes". Off we went with both trailers working flawlessly. My only
worry
was that the girls would get bugs in their teeth because of their big
smiles
as the wind blew their hair and they could look eye-to-eye with the
other
riders. Both were very comfortable and reported the ride was very
stable (as
long as the dads didn't run the trailer off the road forgetting it
stuck out
to each side of the bike! lol). The wind was ablowin' stiffly in
our faces
so we worked pretty hard on the first half of the ride. My lowest
speed was
6mph and when the wind died momentarily I was up to 11 - 12mph. I
had
Brianne's FM transmitter/receiver system so I could harass her as I
was
riding (and maybe warn her of bumps and turns); she kept asking if I was
all
right because of the loud breathing sounds coming into her ear! lol The
far
end of the 15 mile course was at a fire station next to the airport.
The
break was welcomed. Brianne and I made it only a few hundred feet back
down
the course when I discovered one of the trailer's wheel bearings
had
self-distructed! Darn! Well, she made it half of the 15 miles! I called
our
special priority SAG truck (Susan) and soon Brianne and the disabled
trailer
were on their way back to the finish line. I finished the 15 mile
course
trailing Sophia so I could evaluate Phillip's trailer's
performance.
- There were two other interesting bike trailering rigs out that
day also.
The Helms brought a custom commercial recombent trailer with
attached
optional pedaling they wanted to try out (guesstimate price tag
$2K-ish)
with Dylan which looked like it performed well. Sienna rode with
mama in a
standard child's trailer. Another family rode a tandem with an
attached bike
behind that with a standard child's trailer behind that! No
tight turns for
them! lol
- After the Ride back at the Veteran's Building
I gave wheelchair trailer
rides in the parking lot for Dylan, Sienna, Izzie,
and Owen! A fun time!
- Outback provided a delectable lunch of ribs with all
the trimmings, and
carrot cake and/or cookies for dessert. Patrick Kruk and
his crew are just
beyond the best! I say it over and over but they blow me
away coming out to
volunteer their time to help us like this, just because!
Our kids of course
capture their hearts once they are there but they came out
just to support
the community! How ultruistic is that?! I love 'em every
one!
- Once that shindig wound down (about 4pm) about 2 dozen of us retired
to
Woodstock Pizza to continue the celebration! Susan and I left about
6:30pm
and the rest were still going strong. We were in bed in the camper by
8:30pm
(normally 11-ish) and only intermittently heard the rain pattering on
the
roof through the night.
Another wonderful partnership effort
between FARA (Kyle/Felicia) and local
supporters resulting in $87K+ for FA
research! A note is that these regional
Ride Ataxia fundraisers cannot be put
on by FARA alone. If we want a
treatment to happen the soonest for our
children then these $87K - $150K+
riding fundraisers need our active
volunteer participation to continue.
Leadership and organizing, being a
support person volunteer, and/or putting
together teams to participate and
tapping the network of your personal
supporters is what it takes to pull off
this event. We are all busy but
involving your FAer (and ataxian for our
non-FA members, because some of the
coming treatments may make a difference
to them as well) in this event (or
one you are doing) will give them a great
social outlet, a bonding
experience, and a sense of some control in this FA
life. Each participant,
and especially the ataxian participants, can see how
their efforts are
directly accelerating FA research. Sorry if I'm lecturing
but I could see
the excitement and satisfaction in the faces of all the
ataxians that were
there.
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