Good Morning! Here just a couple of days before Ride Ataxia NorCal comes the press release that the most promising of the FA treatments being developed is now officially going into clinical trials!
http://www.prnewswire.com/news-releases/repligen-files-investigational-new-drug-application-with-fda-for-first-drug-targeting-the-core-genetic-defect-of-friedreichs-ataxia-93666409.html
The sun is shining brighter and the air smells sweeter today! This is why we are throwing buckets of money into FA research, for the accelerated progress it causes; money is time in the FA world!
Gotta go finish packing the trailer!
:-)
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I am riding to raise research money for Friedreich's Ataxia, a progressive disorder my daughter Brianne has had for 25 years! Join me by sponsoring my ride at http://rideataxia.kintera.org/faf/donorReg/donorPledge.asp?ievent=1099129&lis=1&kntae1099129=28A75B9103784DB3BD74935B90D63199&supId=351303087
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Paul, As I think we mostly agreed one A.M. at a MOB meeting, the most down we ever were was WHEN WE BELIEVED WE WERE W/O HOPE. The world is truly a little brighter and smells fresher to victims,parents, friends and workers with FA as these trials begin. May God grant a special blessing to this work. Safe riding to all.john
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